Familial Hypercholesterolemia (FH) is an inherited disorder of cholesterol metabolism leading to premature coronary heart disease. 1 in 500 West Australians have FH but 80% of cases are not diagnosed. The early diagnosis and treatment of FH can delay or prevent the onset of Coronary Heart Disease.
Objectives of the group
The aim of establishing a FH Support Group is to improve information, communication and support services for families with FH in Western Australia and help prevent premature deaths caused by high cholesterol and cardiovascular disease.
Activities and Services
• Providing information, advice and support
• Supporting health professional awareness
• Providing a network for individuals and their families with inherited high cholesterol
• Promoting healthier lifestyle options.
Publications & Resources
Support Group Brochure & Member Form: http://www.geneticandrarediseasenetwork.org.au/resources/FH-Brochure-Member-Form-2014.pdf
Issue 9: Spring 2014
Issue 8: Winter 2014 http://www.geneticandrarediseasenetwork.org.au/resources/FH-Newsletter--Winter-2014.pdf
Issue 7: Autumn 2014 http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolaemia-Newsletter-2014-Autumn.pdf
Issue 6: Summer 2014 http://www.geneticandrarediseasenetwork.org.au/resources/Newsletter-2014---Summer.pdf
Issue 5: 2011 http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-2011-No5.pdf
Issue 4: 2011 http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-2011-No--4.pdf
Issue 3: 2011 http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-April-2011-No3.pdf
Issue 2: December 2010 http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-2010-No2.pdf
Issue 1: June 2010 http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-2010-No1.pdf
Newspaper Article: Health a Family Matter http://www.inmycommunity.com.au/shopping-and-lifestyle/health-and-wellbeing/Health-a-family-matter/7664862/
Exercise Log: http://www.geneticsupportcouncil.org.au/resources/Exercise-Log-Familial-Hypercholesterolaemia.pdf
Information provided in this website is for informational purposes only and is not intended to serve as medical advice. Health information should be discussed with your health care provider.
Updated: July 2014
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