Support For People Living With Inherited High Cholesterol
  FH Family Support Group
 
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Familial Hypercholesterolemia (FH) is an inherited disorder of cholesterol metabolism leading to premature coronary heart disease. 1 in 500 West Australians have FH but 80% of cases are not diagnosed. The early diagnosis and treatment of FH can delay or prevent the onset of Coronary Heart Disease.
 
Objectives of the group
The aim of establishing a FH Support Group is to improve information, communication and support services for families with FH in Western Australia and help prevent premature deaths caused by high cholesterol and cardiovascular disease. 
 
Activities and Services
• Providing information, advice and support
• Supporting health professional awareness
• Providing a network for individuals and their families with inherited high cholesterol
• Promoting healthier lifestyle options.

 

Publications & Resources

Support Group Brochure & Member Form: http://www.geneticandrarediseasenetwork.org.au/resources/FH-Brochure-Member-Form-2014.pdf

 

FH News:

Issue 9: Spring 2014

Issue 8: Winter 2014                                                                                                                              http://www.geneticandrarediseasenetwork.org.au/resources/FH-Newsletter--Winter-2014.pdf

Issue 7: Autumn 2014                     http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolaemia-Newsletter-2014-Autumn.pdf 

Issue 6: Summer 2014 http://www.geneticandrarediseasenetwork.org.au/resources/Newsletter-2014---Summer.pdf

Issue 5: 2011                               http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-2011-No5.pdf

Issue 4: 2011                               http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-2011-No--4.pdf 

Issue 3: 2011                               http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-April-2011-No3.pdf

Issue 2: December 2010                    http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-2010-No2.pdf

Issue 1: June 2010                            http://www.geneticsupportcouncil.org.au/resources/Familial-Hypercholesterolemia-Newsletter-2010-No1.pdf

 

Other Publications:

Newspaper Article: Health a Family Matter  http://www.inmycommunity.com.au/shopping-and-lifestyle/health-and-wellbeing/Health-a-family-matter/7664862/

Exercise Log:                             http://www.geneticsupportcouncil.org.au/resources/Exercise-Log-Familial-Hypercholesterolaemia.pdf


Disclaimer
Information provided in this website is for informational purposes only and is not intended to serve as medical advice. Health information should be discussed with your health care provider.

 
Updated: July 2014
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