Familial Hypercholesterolaemia Cascade Screening Program WA (FHWA)
The FHWA Cascade Screening Program at Royal Perth Hospital has been established to detect new cases of FH in WA by screening relatives of patients with FH. The systematic method of screening family members is called cascade screening. Patients with FH are referred from lipid clinics, cardiology and general practitioners and are invited to participate in the program. Relatives of participants who consent to cascade-screening are contacted by the FHWA nurse and are invited to attend the clinic for testing for FH. All FHWA patients receive ongoing medical care provided by their GP and specialist physician.
FHWA Clinic Nurse
Phone: 9224 8092 or Fax: 9224 8093
Genetic and Rare Diseases Network
The Genetic and Rare Diseases Network (GaRDN) is a not for profit organisation that acts as a peak body for genetic support groups in Western Australia, in particular those groups who have elected to become members of the Network. The need for this peak body to coordinate and enhance the effectiveness of community genetic support groups was identified in the Review of State-wide Delivery of Genetic Services in Western Australia, conducted in April/May 2000.
Phone: (08) 9845 8999
Suite 7, Oasis Lotteries House, 37 Hampden Road Nedlands WA 6009
The Heart Foundation is dedicated to reducing the dreadful effects of the number of people living with, or dying from heart, stroke and blood vessel disease.Since being established in Australia in 1959 they have funded world-class cardiovascular research, supported health professionals in their practice, developed health promotion activities, informed and educated the public, and assisted people with cardiovascular disease. Today, the life expectancy of Australians is about ten years longer for men and nine years longer for women.
The Australian Atherosclerosis Society (AAS) - Familial Hypercholesterlaemia
FH-Australasia and the AAS Familial Hypercholesterolaemia Sub-Committee is a dedicated team of clinicians and scientists from around Australia and New Zealand. Activities currently underway include the development of management guidelines, information sessions for clinicians, and the establishment of various services around the country.
The AAS is also delighted to be the coordinating organisation for MEDPED Australia and Asia-Pacific. MEDPED stands for Make Early Diagnosis to Prevent Early Deaths. It is an international research project and a nonprofit organization funded to register and help treat people with inherited cholesterol disorders, such as Familial Hypercholesterolemia (FH). The goal is to find persons with FH that are either undiagnosed or inadequately treated and help them with finding a diagnosis and the right treatment.
Heart UK is a national cholesterol charity for patients and their families and can help with specific enquiries particularly with Familial Hypercholesterolaemia